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family Thanksgiving

Today all my siblings and their grown children and even a grandchild came over to celebrate Thanksgiving. Megan was down for nap before everybody showed up and when she woke up we had a house full, a very loud houseful.  Historically speaking, Megan struggles with walking into a room full of people like that. The last time we had the group over was for her birthday party and she had a hard time with it. Everybody's loud. There's people everywhere, she just has a difficult time adjusting in the past. We brought her downstairs. She let go of my hand, and walked right into the living room of people by herself. She walked right up to one. Uncle said hello, walked over to another one. Ask for a hug, went around the room seeing everybody who was there never once. Was she upset. It was phenomenal. Many many comments from people there about how very different she was today.

head hurts

We've been working with Megan for a while with a pain chart so she can tell us when she's in pain. And she has a full body picture of herself where she can show us where she hurts. Today was the first time she actually told me she was hurting and then showed me where on her photo she was hurting which was her head. And then she used her talker to also tell me that her head hurt. She didn't want any ibuprofen she just wanted me to know.

hungry and no more booster seat

A few days ago we tried Megan in the van without her booster seat to she if she would be okay with it now, she wasn't the last time we attempted it. After riding around on just the seat I had her care giver ask her if she wanted to keep riding on the seat or if she wanted her booster seat back and she held up the booster seat so Megan would know what she was talking about. Megan put her hand on the booster seat, pushed it and said "no more." Monday I gave Megan a snack and she finished it and a few minutes later she asked for me. When I came in the room I told her that she wasn't going to get any more snack because she'd be having lunch in 45 minutes and her therapist would be there in about 15 minutes. She kept motioning towards the kitchen and making grunting noises trying to ask for more snack and I just kept telling her no. I started to walk away and she looked at me and said "hungry." Let me tell you she got some more snack.

playing hide and seek and uno

For a while, Megan would play hide and seek with us, and she had even started covering her eyes when it was her turn to count. However, we lost that for several months and on Friday it came back. But this time she's much better at it. She's having way more fun and super excited about it . She's also back to playing cards with us again, which is a lot of fun.

eeee and therapy without me

Megan made the e sound when she saw her Ernie bath toy before her shower I think that might be the first time she's ever made that Chris clean e sound.   Yesterday and the day before during her therapy sessions speech occupational therapy and physical therapy Megan did quite a bit of her session without me. We've been doing a little bit of that for occupational and speech for a bit now but it was the first time she's ever, ever done physical therapy without me.

clearing dishes

Megan has started clearing her own dishes from the kitchen table walking them to the sink and putting them in the sink gently. The last time we tried to teach her how to do this she would take them over to the sink and just drop them, or not pay attention to how she was holding it on the way to the sink and spill anything left, or just let the utensils fall out everywhere. The first time she did it a couple of days ago she just picked up the bowl correctly used her thumb to hold the spoon in the bowl walked over and set it in completely gently. Also yesterday I was massaging her low back and hips and while I was doing it I said to her that somebody who was trained on how to do it correctly would be doing it for her today and Megan picked her head up and looked at me and smiled the biggest smile.

Bath Skills

 I meant to post part of this before vacation.  Megan has been very responsive and "with it" in the bath.   She got a new bath toy (bath book).  It came with a suction cup net that contained suction characters from the book (dinosaurs).  I asked her to match each character to the pages.   She pulled each character that I had stuck to the side of the tub and laid it on the page next to the picture in the book.   I did one and she corrected me.   She said no,  threw the one I put there in the water and grabbed the correct one.   They look similar but one is a slightly different color and has webbed feet.  Now that we're back from vacation I gave her a soaking,  playing bath.  We've played a game in the past where I line up some of her toys on the edge of the tub,  count to three and karate chop them into the water (she claps and laughs).  Today she was lining them up on the side and telling...

understanding and responding

Megan had another wonderful day today. She did so many things understood everything that we said to her and complied. She was doing her favorite thing riding in her barrel train and they took her up to the barn area and told her she had to go through each game area and play before she could get back in the train and she just climbed out and did it. She played basketball, and connect four etc. She did so amazing in the bath too. Let me walk to the other side of the room and do things a little differently than we would ever have done them and she was just happily doing it. She did great on the wagon ride this morning they had to park for long periods of time to let the other kids feed the animals and she just looked at the animals and hung out and waited for them to start moving again.

continued gains

Megan is not only continuing to be more verbal, but she is also understanding and responding to pretty much everything. She was trying to get her dad to pick up a piece of food she had dropped on the floor because she wanted to eat it and when I told her that if she was asking for the food that was on the floor that we don't eat food off the floor she went right back to what she was doing and stopped asking for the food. Not that long ago that wouldn't have solved the issue and we would have had to throw the food away to get her to stop fixating on it. We are on our first day of our vacation and she has been amazing. She was excited to do things that I was concerned she might be afraid of but we tried them and she had so much fun.

more verbal

For the past few days Megan has been a lot more verbal. She is saying word approximations, she is saying words. She's saying a bunch of stuff that she thinks is words that we can't quite understand.

Hear the Trumpet Blast

 Originally Kimberli thought we should pray for Megan on Sunday, September 25th.  I wasn't feeling prayed up and felt sore and tired, so I told her we should wait.  Yesterday, I felt like God wanted me to do a word study on one of the scriptures that we had prayed over Megan: Happy are those who hear the joyful call to worship, for they will walk in the light of your presence, Lord . Psalms 89:15 : I read it in a few different versions and followed a few different reference links. The words in Hebrew that are translated "joyful call to worship" are the trumpet blast that is mentioned in Lev 23:24 where it talks about Rosh HaShanah and the feast of trumpets which this year (2022) starts on September 25th!  I felt led to let Megan "hear the trumpet blast".  So I found a video on YouTube where a lady was blowing the shofar: Video   I played it for Megan while she was sitting with me in my comfy chair and watching her iPad videos. At one point she looked over ...

more verbal and patient

Megan was very verbal when playing with Sam this morning just before nap. She kept asking him for hugs and he said to her are you asking me for a hug? She replied verbally mor hu. Clear enough that all three people in the room said you just said more hug and she proceeded to say that to him multiple times as well as attempting to say his name which she says am. Also she was wanting him to do things over and over and the more you do that she gets more aggressive and so to try to break the cycle I started counting told her she couldn't and started counting down from 10 and she just sat there and didn't even attempt it while I counted down from 10 very very slowly she didn't multiple times it was amazing.

Family Prayer Time

Last night we spent some family time with Megan before bed and prayed over her together while performing a prophetic action.  At first it seemed like an evil spirit was coming against us.  Megan was fighting with all her skills to keep us from shining a light on her head and praying.  She was visibly upset.   We were playing worship music (Great Are You Lord) quietly in the background on Kimberli's phone.  Kimberli started reading some of the scriptures out loud that the Lord had given to us previously.  As we agreed together in prayer and Kimberli continued to read scriptures, Megan visibly calmed and started to interact with us.  I'm not sure what scripture Kimberli was reading when it happened, but it was like a switch had flipped and it was very similar to the experience we had during the virtual healing service. 

way more independent

This morning during PT Megan decided to walk all over the house without holding anyone's hand she spent more time and that 15 to 20 minutes walking without holding people's hands then she has probably in the whole year added together . She's also been amazing at listening grabbed my arm and I told her that's not okay and she immediately let go and eased up and she didn't do it with just me she did it with others . She's had a really amazing morning of progress and growth and healing

toes

Megan's big toes have been bent the wrong direction for a very long time and we've been using orthotics to fix them and her left big toe specifically had gotten so bad that two weeks ago I asked if we needed to see a podiatrist or an orthopedist so I would know who to make an appointment with. Today when I looked at Megan's toes oh boy they are not perfectly in alignment yet but her toes are at least 50% better than they were two days ago

looking people in face with expressions and travel bed

Multiple times yesterday when Megan was playing or interacting with somebody something would happen and she would whip her head around and look the person straight in the face and make a very appropriate facial expression that went with what had happened. Once it was surprised, once it was an attitude I don't know what emotion you would call it about being ratted out by the person, once it was being proud of herself . We started introducing her to the travel bed yesterday for our vacation and the first time she was terrified to go in the room the second time we went in the room yesterday it only took her a few minutes before she was interacting by throwing things to the bed and then by this morning she climbed in the bed and zipped it the last time we had to get her used to the bed it took about a week of trying twice a day.

more tolerant

Megan was more tolerant today of not getting her way, or being told no or things changing.

riding bike

Megan learned to ride her bike today after trying off and on for 4 years

healing scriptures

We started playing healing scriptures in her room at night after leaving.

brief catch up

On Saturday we attended the bethel healing rooms on Megan's behalf. During that session peace was spoken over Megan and she visibly calmed down. Since that time we have seen several adjustments to the way Megan behaves. She's been calmer in bed . She's been more attentive with regard to listening if she's told something to stop doing something she stops or to do something she does it Not every time but definitely more often and more deliberately than before . Today she played with a toy completely by herself that previously she had only played with when somebody else helped her.  We were encouraged to declare her healing to her directly instead of just in our prayer time and she will calm down and listen and then ask for more.